who here has musculoskeletal ailments?

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who here has musculoskeletal ailments?
I do! :| 76%  76%  [ 13 ]
I don't. :mrgreen: 6%  6%  [ 1 ]
i'm not sure. :shrug: 0%  0%  [ 0 ]
I want my ice cream! :chef: 18%  18%  [ 3 ]
Total votes : 17

auntblabby
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21 Jul 2018, 2:49 am

IOW does anybody here have aches and pains traceable to arthritis/wear and tear injuries or congenital malformations of bone, joints and sinew?
for example, I have left leg shorter by 20mm, and lumbar [low back] spondylolisthesis which is a displacement of one or more vertebra joints relative to the other joints. I also have lumbar stenosis [narrowing], sciatica [pinched lumbar spinal nerve roots resulting in shooting pains down the affected side], and scoliosis [abnormal lateral curve] of thoracic [chest level] spine.
let us commiserate together :| and mutually find new ways to cope :study:



Temeraire
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21 Jul 2018, 3:10 am

I will join you in your misery Auntblabby.

There is no fun in having the body of a 100 year old.

One of the things which has helped me stay sane is help.

Being able to ask for help and getting it.

Took me a long time to get my head around this though being a very independent lady before the decay set in. :lol:



auntblabby
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21 Jul 2018, 3:33 am

Temeraire wrote:
I will join you in your misery Auntblabby. There is no fun in having the body of a 100 year old.
One of the things which has helped me stay sane is help. Being able to ask for help and getting it. Took me a long time to get my head around this though being a very independent lady before the decay set in. :lol:

I live out in the sticks and there is nobody to help. so if I am not here on WP for more than a few days, you'll know I didn't get the help in time. :skull:



Noca
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21 Jul 2018, 8:06 pm

I do, I have Multiple Hereditary Exostoses(MHE) a rare genetic bone and neurological disease. My body either has difficulty producing or unable to produce at all heparin sulfate, a long chain sugar that the lack of it causes bone spurs to form on the ends of my growth plates sort of in a caulflower shape, also warping my limbs. The tumors catch on muscles, tendons, ligaments and pinch nerves. I had roughly 50 bone tumors throughout my body with 6 surgeries to removal a total of 9 of them. The deformed limbs hurt and the disease causes early onset arthritis. It also affects the nervous system due to the defiency of heparin sulfate in nerve cells causing chronic fatigue, muscle weakness, brain fog, anxiety, etc



auntblabby
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21 Jul 2018, 9:22 pm

^^^I am sorry you suffer so. :( I wonder if there is something about being on the spectrum that is genetically or epigenetically linked to various diseases?



Noca
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22 Jul 2018, 7:39 pm

auntblabby wrote:
^^^I am sorry you suffer so. :( I wonder if there is something about being on the spectrum that is genetically or epigenetically linked to various diseases?

Thanks. Surgeries resolved much of my pain and the rest is taken care of by LDN, strength training and cannabis. The neurological symptoms and rest of my health issues still suck though and cause me a lot of suffering. MHE is actually associated with an increased risk of ASD. I bet ASD is associated genetically to quite a number of diseases.



auntblabby
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22 Jul 2018, 8:19 pm

when it rains, it pours.



Magna
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22 Jul 2018, 8:21 pm

I wrecked ligaments in one of my knees on two different occasions in my youth. It's now very stiff and painful to bend.

It's said a characteristic of ASD is hyper-flexibility? I don't have that. Not sure I ever did. Years of a sedentary job has added to my inflexibility. I know I should stretch, but I don't. I have a limited range of motion and I'm achy a lot.



Noca
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22 Jul 2018, 8:42 pm

auntblabby wrote:
when it rains, it pours.

Hugs



auntblabby
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23 Jul 2018, 4:36 am

:flower: I've never been anything like "hyperflexible."



auntblabby
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23 Jul 2018, 4:42 am

btw, for those of us amuuuricans who lack the luck to have Cadillac insurance plans that pay for everything, I highly recommend the following-

*1-2 grams daily of concentrated curcumin, 5-10mg daily of piperine [potent anti-inflammatory/antioxidant combo]
*5-lox inhibitor [extract of frankincense], daily
*low-acidic diet [anti-inflammatory]
*rigorous core exercises, as a strong core helps support the spine
*good orthopedically correct footwear, as that also helps align everything from the feet upwards
*avoidance of weight-bearing exercise that is harsh [like that torture they do in "the box" and whose name escapes me now :x ]

*avoidance of any exercise which twists the torso in opposite directions, that is a recipe for spinal arthritis and worse. this last point is taken from personal experience.



SabbraCadabra
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23 Jul 2018, 5:08 am

I think my bones are okay, but my muscles are usually giving me pain.

This latest round of muscle ache has been lingering for a week or two now...I'm starting to get a little worried... :?


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Temeraire
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23 Jul 2018, 5:09 am

auntblabby wrote:
Temeraire wrote:
I will join you in your misery Auntblabby. There is no fun in having the body of a 100 year old.
One of the things which has helped me stay sane is help. Being able to ask for help and getting it. Took me a long time to get my head around this though being a very independent lady before the decay set in. :lol:

I live out in the sticks and there is nobody to help. so if I am not here on WP for more than a few days, you'll know I didn't get the help in time. :skull:


Blimey, that is precarious situation. I hope you don't disappear.

I would love to be more secluded, although what I have now is pretty quiet and pleasant.

What puts me off is that I wouldn't have access to services I may need quickly in the future.

I must admit that I have lovely neighbours so that is a bonus and a fair exchange.



auntblabby
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23 Jul 2018, 6:18 am

that is the pitsy part of living out in the sticks, nothing is close by, no real access to services.



Noca
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23 Jul 2018, 1:02 pm

auntblabby wrote:
btw, for those of us amuuuricans who lack the luck to have Cadillac insurance plans that pay for everything, I highly recommend the following-

*1-2 grams daily of concentrated curcumin, 5-10mg daily of piperine [potent anti-inflammatory/antioxidant combo]
*5-lox inhibitor [extract of frankincense], daily
*low-acidic diet [anti-inflammatory]
*rigorous core exercises, as a strong core helps support the spine
*good orthopedically correct footwear, as that also helps align everything from the feet upwards
*avoidance of weight-bearing exercise that is harsh [like that torture they do in "the box" and whose name escapes me now :x ]

*avoidance of any exercise which twists the torso in opposite directions, that is a recipe for spinal arthritis and worse. this last point is taken from personal experience.

I find posture correcting strength training exercises help with pain a lot. I do hip thrusts to correct anterior pelvic tilt and excessive lordosis, resistance band underhand above head pull aparts for my upper back/kyphosis, woodchoppers with resistance bands, planks, decline crunches and then whatever other misc arm or back exercises just for fun. I add in stretched post workout and use a massaging pillow to break up tight muscles. I will stretch my chest out(to help my upper back) and my neck along with my legs/back(by leaning forward and touching the floor while standing) and hip flexors several times throughout the day. It helps manage pain.



auntblabby
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23 Jul 2018, 3:40 pm

^^^sounds rigorous :wtg: